Are Schizophrenia Simulations Accurate?

Are Schizophrenia Simulations Accurate?

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hi everyone and welcome back to the Living Well schizophrenia YouTube channel in today's video I'm going to be reacting to and discussing whether or not the schizophrenia simulation videos on YouTube are accurate but first if you're new here my name is Lauren and I make videos on what it's like living with schizophrenia or schizoaffective disorder so make sure to subscribe to our channel if you want to learn more about that and turn on notifications not to miss anything also if you find videos like this helpful at all please make sure to check out our patreon page the link is in the description below we're really working hard to develop this
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channel and to build resources for you all and we would really appreciate any support you can give thank you okay so here's how we're going to organize today's video so I'm going to watch three different schizophrenia simulations the first one being the most popular or the most viewed schizophrenia simulation on YouTube the second one being quite a popular one that was more recently uploaded and the third one being the one that I find to be the truest to what it's actually like living with schizophrenia or schizoaffective disorder and so we are going to include
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timestamps for when I talk about each of these videos in the description below and we're also going to include links to the full videos because I'm not going to show the full videos what I'm talking about them I'm only going to show small clips that I feel are important to discuss so if you want to watch the full videos the links the links are in the description below all right so viewing some of the videos that we're going to view today it might be a little bit triggering I know for myself I felt a little bit triggered when I was first watching these videos and so we're just giving a quick trigger warning
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beforehand you know if you are experiencing triggering effects and you are in distress at all watching these videos please don't continue to watch them they are just meant to show what it's like living with the illness but for some people who are living with it it may be triggering so just a quick trigger warning in advance that we are going to be showing depictions about hallucinations paranoia delusions and all those kinds of things so schizophrenia simulation is one of the
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top search results on YouTube so I'm just going to type in schizophrenia in YouTube the search and you can see that schizophrenia is the first one and then schizophrenia simulation is the next top result so a lot of people are searching this for this and a lot of people want to know what it's like so that is why we're making a video trying to determine whether or not these are actually accurate depictions okay so the first one is the most viewed the first one that pops out it's been viewed
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19 million times at this time and so you're going to watch this one first so I like them Adiemus of the video so far and they're kind of showing that at times people who are living with schizophrenia or schizoaffective disorder experience the world much like anybody else so I kind of liked that they included a portion of that I'm kind of waiting for the shoe to drop when they start kind of like sensationalizing symptoms but so far so good [Music] okay so so far I for me personally
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anyway this is a little bit a little bit much it's not like I wake up from a nap or whatever and immediately I'm just bombarded with like overwhelming symptoms that's usually not the way it works usually for me anyway the symptoms kind of creep up slowly and it's not just all of a sudden I'm hit when I wake up with overwhelming symptoms also the voices in this are really disturbing um
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and for me it's more like this kind of androgynous voice that is kind of just commenting on things that I'm doing and it's not like this like weird like whisper menacing overwhelming voice it's it's more of a clear voice that is just kind of either commenting on what I'm doing or making comments toward me or when it's when it's bad and I'm not on medication making like and hallucinations and that kind of stuff but so far it's not a bad
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representation he picked up the phone and then put it down without saying anything which is which is kind of accurate like when you're experiencing a lot of symptoms it's hard to focus on reality and so it's hard to interact properly with reality so that's not okay
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so the dialogue that's being delivered about the voices is kind of accurate at times like in terms of what they're actually saying it's kind of accurate but the overwhelming like whispering and like background like mumbling and stuff I personally don't experience it's more clear in terms of what's being said to me in terms of the people on the TV interacting with you um for me anyway it's less direct and it's more like I interpret what I'm seeing as subliminal
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messages towards me that are directed toward me when I'm experiencing that I know some people do you think that the television are the people on television are speaking directly to them but for me it's more of like the secret messages that are hidden in that when I'm experiencing that symptom like I kinda have to laugh at this one um I personally have never experienced seeing an explosion in my coffee cup but maybe some other people have but for me this is a little bit sensationalized so the explosion was a little ridiculous for me but um the messaging that was
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being said to him was a little bit more accurate in terms of like thinking that something was poisonous and you shouldn't consume it and then not consuming it because you believed those messages so um it's it's hard to understand sometimes that voices in your head are just voices in your head and you really give them a little more weight than you should and so he didn't drink the coffee because they were telling him not to it was poison and that's kind of accurate [Music]
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[Music] so he opened the door and like him you know he locked the door and then opened it slightly to his kind of Kiko because he was hearing voices that were saying not to open the door and also to open the door and he was stealing probably paranoid about interacting with a person who rang the doorbell and that's kind of accurate feeling like sometimes like sometimes I've been so paranoid about people at my door that I just hide and I don't answer the door because voices either are telling me not to or because I'm just feeling overwhelming paranoia
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and so that's kind of accurate again though I personally don't experience like lots of voices at the same time telling me conflicting things it's more like the voice is conflicting with my own internal dialogue so um if they're telling me not to open the door but I want to open the door that's more where the conflict comes in it's not like I'm being inundated with lots of different voices telling me different things but I know some people may experience that so for me personally it's not really like that but it may be for other people
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that's all sensationalized - I've never seen like bloody hand reaching out from a package or whatever I do experience like some visual hallucinations but usually they're in the form of like seeing spiders crawling by or seeing shadows out of the corner of my eye or I guess one time I hallucinate 'add an actual person but usually I personally don't experience like really terrifying visuals like that one but he batted the
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box away after he saw that which is really accurate in terms of like being startled by something in your mind or a voice or something and then reacting in reality to it so I've definitely had that where I've experienced some sort of sensation that's probably hallucination and then I react in the real world by either like jumping back or smacking a box out of the way or something like
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that so that's kind of accurate so that's kind of accurate in terms of like when you're in the midst of psychosis and people who love you are around you and noticing that something is a little
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off it can be really easy to kind of barricade yourself away from them and to think that they are part of the problems or the overwhelmingly kind of scary perceptions that you're having of the world and they kind of get wrapped up into those delusions that you're experiencing and so when I was in the midst psychosis the last time rob was kind of one of these people that got wrapped up into my delusions I'm the closest to him
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in of all the people in the world and I know that he loves me and cares about me and I love him and care about him but I was still kind of scared of him when I was in the midst of my psychosis and so it was kind of accurate that he was cowering away from what I assume is his partner even though she was saying like hey I'm worried about you I think it's time to go to the hospital and that kind of got wrapped up into the delusion of like they're trying to hurt you the hospital is a bad place and that that's pretty accurate
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The Scream at the end was a little much I don't think that that's that was a little sensational in terms of like the experience I guess internally it's like you're screaming because it's all very scary overall that was a pretty good representation of what schizophrenia is like it's very very hard to to accurately display in video format what it's like because it's kind of like all of your senses are just kind of on
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overdrive or misfiring or that kind of stuff so it's very hard to display that in video format but I think they did a not bad job some of this stuff was kind of sensational sensationalized but overall it wasn't bad also it's really important to note that this video is a depiction of somebody who is in the midst of like intense psychosis and probably needs to get to the hospital um on an average day somebody who's living with schizophrenia or schizoaffective disorder and is properly managing it is not going to experience the world like
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this this is not how it experienced my world on a day-to-day basis when I stopped taking my medication and I'm in the midst of intense psychosis this is more accurate as to what it's like but on a day-to-day basis people who are living with schizophrenia don't experience the world like this maybe there's like glimpses of parts of this that they experience but it's not this extreme okay so the next schizophrenia simulation video that we're going to watch is called realistic schizophrenia simulations we'll see how realistic it is it's the second one when you search schizophrenia simulation
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on YouTube and it was uploaded about two months ago and already has 27,000 views so we are going to check this one out well where am I where are you going look out this is pointless even that kid knows her stupid nuts ever'one no sir don't go in there um so I'm assuming that the first voice that
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we heard is kind of his internal dialogue and him speaking to himself which I like that they included because you do still have your own internal thoughts when you're in the midst of psychosis or living with schizophrenia and I also thought it was good that they were like they use his voice to be like look out when the child ran by because it does feel like you're kind of oversensitive to a lot of stimuli and so if there is an unexpected stimulus stimuli running by it it's a little
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jarring and it's kind of gotta be aware of that and so that was kind of accurate okay so I just want to comment on like the sound of the voices this is not how I experience voices where it's like this like intimidating husky voice and this little like small feminine voice for me personally I really only hear one voice typically and it's a really androgynous voice I can't really tell if it's male or female or like I can't it's I can't
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put a finger on it really I've kind of identified it I've named it Jennifer just as a way to kind of be like okay that's what that is that's who that is and I'm not it helps me not to pay as much attention to it but in terms of how he's hearing voices that's not really how I personally hear voices maybe that's how other people hear voices every time I go ahead and get some ice cream one go ahead look out nobody cares
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nobody walks you know one could do your skirt so I think it's important to understand that this video is also somebody who is in the throes of intense psychosis and so when I'm experiencing intense psychosis this is kind of what the dialogue is like where it's it's it's kind of harsh and not very nice to you and also giving you kind of command command hallucinations where it's
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telling you to do specific things and it's just kind of for me anyway it's kind of a generally negative overtone and negative commands so that's kind of accurate as well so whose stations are now interacting with real people in the
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situation and that is also accurate because a lot of times when I when I'm in psychosis again it's like it's my my hallucinations and delusions start to interact with people around me where I think that people hate me or they're looking at me funny because they don't like me or they don't like something that I'm doing or there's that kind of tone to things with other people around and I'm being told that you know people
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people don't like me you don't want to be around me and that kind of thing so that is also a little accurate yes it is enjoy the gesture she's leaving because you're worthless you know doesn't matter doesn't matter how fat you get what are you thinking I don't know get some actually going to death forget the ice cream ah delight where
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would they go look out she knows she knows even he doesn't want to so I like that they're incorporating like lights and they're saying look out again because when you're in psychosis your environment feels very overwhelming and it's hard to focus on really anything because everything around you is like over stimulating and especially in an
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environment like this like a corner store where there's a lot of people and there's a lot of things around you it's hard to focus and it's hard to kind of know or like ground yourself in reality and so I like that they incorporated like oh the lights are whispering to you or like look out there's stimulus moving around because that's kind of what it's
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like no Gross was going for his gun so again they're kind of showing that like you interpret other people's behaviors or actions as being about something you did or being about something to do with you and I think that that's a common delusion that people get wrapped up in when they're in psychosis they think that everything around them and
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everything that everybody's doing or I anyway I think everything that everybody's doing around me has to do with something I did or something I am and so it's easy to get like sucked into this narrative that everyone hates you because they're not looking at you or everyone is out to get you or that kind of thing and so that a little bit accurate - you need to get out just do off it down just steal it steal you thief that's right outside
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you're still not safe he's under gonna father is calling the cops yeah you want to steal that to steal a movie go ahead I know you want to it's always worthless get out so intrusive thoughts is also something that a lot of people with schizophrenia I think experience I experience it where like he was being told like Oh steal this or steal the movies or whatever and when I'm in the midst of psychosis I do hear
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things like this and I do have thoughts like this that I would never I would never entertain usually or never even think about usually but you get intrusive thoughts when you're in psychosis about things that bother you like steal this or you know do something that you know is wrong and so that's kind of accurate to [Music] so along that same beam of intrusive thoughts a lot of times they have to do with self-harm when I'm in the throes of
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psychosis and that's kind of an accurate thought or hallucination that happens when I'm in the throes of psychosis and that's kind of another along the lines of like the intrusive thoughts that I was talking about before nobody cares who okay so it was kind of an accurate portrayal of how like disorienting the voices that you can
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hear and that like commands that they're giving you and the tone of it around like self-harm and that kind of stuff can be really overwhelming and I also like how there was sirens in the background which you would assume are police and there was like instant paranoia around that and that is something that I experienced a lot when I'm in the throes of psychosis is paranoia around police and thinking that they're out to get me or they're following me too you know I don't know get me in some way and so that's a really accurate
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representation the ending when it kind of went black and like it was like overwhelming voices is not really something that I experienced very much I think it was a little sensationalized and I think I think the whole video was a little bit sensationalized but overall I think that it was a pretty good representation of what it's like in terms of kind of portraying the different stimuli around you that are overwhelming and the way you interact with other people when you're in the throes of psychosis and it wasn't a bad
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video in general okay so those first two videos that we watched are kind of not bad portrayals of what it's like to be in the throes of psychosis but the next one that I'm going to show you is one that's a little bit more nuanced in terms of being an accurate depiction of what it's like to live with schizophrenia schizoaffective more on a day to day basis and so that's why I kind of like it so it's by a youtuber named Johnny Benjamin who is actually one of the first youtubers that I found when I was first experiencing symptoms
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and I returned to YouTube to kind of see what was going on and so I really liked following his journey on YouTube but it was the video that I'm going to show you is called sometimes I'm skits effective all of the time I'm human sometimes sometimes thanks for breakfast sometimes so I really like the start of
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this video where he's just showing that he's just like anybody else where you know sometimes he has cereal for breakfast sometimes he takes an apple for breakfast and sometimes Jaycee granola bar for breakfast and like we're just like anyone else in that regard we're you know were not really affected by our symptoms in day to day decisions and tasks like that sometimes we are affected by our symptoms but he's just
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showing the money in his face pick up the glass take up the glass so I really
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really like that depiction because it's completely accurate in terms of my experience with the illness so you'll be just engaging normally in an everyday situation like he was having dinner or something with a group of friends and you could hear the chatter in the background and you could see that he was continuing to engage with his friends and it looked like everything was normal but then he was also showing you that what he was experiencing inside was not as calm and composed as he was exhibiting on the outside and he was having some really intrusive thoughts
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about throwing the glass of water at someone and that is complete accurate in terms of what I was talking about before about intrusive thoughts happening when you're having symptoms and so that was a really well-done clip in my opinion sometimes I get really paranoid I think someone's following you
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someone's definitely following you yes he's coming as dangerous and is really the thing he's out to get you I'm sure he's out to get you Johnny you need to be careful you need to be really careful as nails when news from the news came closer stay close to Johnny might seem irrational to you but feels pretty real to me so I really really like how he kind of juxtaposed just like an everyday night on the couch watching television and it was fine and normal and then he juxtaposes that with a scene of him
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feeling intense paranoia about somebody following him and that's really what it's like to where you have these moments of normalcy and of where everything is is fine you're doing fine you're just engaging in your life as you always would and coupled with moments where you are feeling your symptoms is more more heavily and so I have definitely experienced paranoia about people following me or about people watching me or that kind of thing and um like he said it may seem a little bit
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ridiculous to be fixated on things like that but it does feel very real to the person who is experiencing them so that was really well done to sconce aside what's too rare any ideas sometimes I get delusions and I started thinking that something's going on around me that's really not happening well that I'm something that I'm actually no like a superhuman who thinks he can save humanity and change the world I was
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convinced that was some sort of Messiah that had been sent down and so I wrote loads of letters and send them off to all sorts of people tainment my vision of how to make the world a better place similar or dangerous or violent as Sunday because my happy believe all of the time my name is Johnny Benjamin my favorite color is blue hating on this I can't stand
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mondays with a passion love chocolate absolutely love chocolate will do anything pretty much anything within reason for chocolate I also have schizoaffective disorder which is a combination of schizophrenia and depression apart from that they're probably not that much different we read the same man you probably hate mondays just as much as me our brains might work a bit differently but really just like you I'm just human I just think this video is
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brilliant in terms of his depiction of normal everyday life and interacting normally with life and experiencing symptoms a little bit more intensely and so when he was sitting in all the papers and discussing how he felt that he was some sort of Messiah and he knew the answers to life and how to make it better and whatnot he was really depicting really well delusions that people can have when they have schizophrenia or schizoaffective disorder and it's not always going to be like harmful things like um like
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self-harm or like intrusive thoughts to hurt other people or anything sometimes it can be like I know the secret to making the world a better place and really running with that idea and so I think he did such a wonderful job of really showing the nuances of living with the illness and I love the ending where he kind of humanized himself even further and you know gave himself characteristics that anyone might have and it was just so lovely how he did it in terms of really humanizing people who
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have schizophrenia or schizoaffective disorder but also demonstrating in an accurate and compassionate way the struggles that they experience on a day to day basis and really showing that they are not scary people who are living with skin ferny and schizoaffective disorder are not these dangerous volatile people who are just lost in another version of reality it's it's quite often that people who are living with schizophrenia or schizoaffective are dealing with their symptoms but they're still able to
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engage in in life and with people around them in a way that you wouldn't necessarily know that they're experiencing symptoms and so I think he just did a really wonderful job of giving a really accurate portrayal of what it's like to live with schizophrenia or schizoaffective disorder okay so that wraps up the three videos that we are showing of schizophrenia simulations that you can find on YouTube I just want to also note that these are my comments on these videos are just based on my own experiences with the illness and they don't encompass
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everyone's experiences and people may relate to parts the videos that I didn't relate to or they may not relate to parts of the videos that I did relate to and so if you want to share your own experiences and your own thoughts on these videos please do so in the comments below we would really love to hear what your experience has been like and also for people who are watching this video wanting to get a more fuller picture of if these schizophrenia simulations are accurate or not your comments and your opinions will also help to inform them further so thanks so
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much for watching this video I hope you found it helpful please don't forget to like the video and subscribe to our Channel also just a reminder that if you want to help support the creation of future videos like this please make sure to check out our patreon page the link is in the description below so thank you so much again for watching and as always wishing you and your loved ones good health see you in the next video bye [Music]
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you [Music]

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